A qualitative study on experiences and needs of breast cancer survivors in Karnataka, India

Background: Breast cancer is the most prevalent cancer among women worldwide and it is found to be increasing. Breast cancer survivors are threatened with various problems due to disease itself or its treatment and might exist for a long period even after treatment. The existing knowledge on experiences and needs among breast cancer survivors in India is very limited. The present study aimed to explore the experiences and needs of breast cancer survivors. Methods: In the present study qualitative study design was used and 17 breast cancer survivors, post six months of completed cancer treatment were selected using purposive sampling technique. In-depth interviews were conducted, the data was transcribed and translated and codes and theme were developed. Results: The study explored the needs and experiences of breast cancer survivors. The experiences of breast cancer survivors were as follows; awareness, psychological expressions, spirituality and misconceptions, economic burden, confinement, body image and bashfulness, maintaining secrecy, family support and physical burden. The needs of breast cancer survivors were identified as financial, informational, breast reconstruction surgery, help in household activities, family support, counseling and emotional support. Conclusion: Recognizing the experiences and needs of the breast cancer survivors by the family members, health care workers, community members and policy makers after the end of treatment is important to facilitate optimal delivery of health care at the community settings to improve the quality of life of breast cancer survivors.