Knowledge among mothers’ of children and youth with hemophilia-a cross sectional survey at a hemophilia center

Introduction: Hemophilia is a genetic disease caused by deficiency of factor VIII or IX. Awareness about the disease condition among parents and children also is as important to manage the disease effectively. Objectives: To assess the knowledge on hemophilia among mothers’ of children with hemophilia and youth with hemophilia. Methodology: A cross sectional survey was conducted at hemophilia center(Manipal, Karnataka). In total, 23 mothers’ of children and 27 youth with moderate and severe hemophilia were included. The participants were selected based on purposive sampling. Approval was taken from the ethical committee. Demographic proforma and knowledge questionnaire was used to collect the data. The data was analyzed using SPSS 16.0 version. Results: The mean age of the participants were 13.68 years. Out of 50 participants 42 had moderate and 8 had severe hemophilia. Moderate knowledge was found among 43.5% of mothers’ and 66.7% of youth with hemophilia. Conclusion: This study shows that mothers’ knowledge on hemophilia is limited and highlights the importance of continual education of parents and youth about their disease.