TY - JOUR
T1 - Need and Viability of Newborn Screening Programme in India
T2 - Report from a Pilot Study
AU - Raveendran, Arya
AU - Chacko, Teena Joseph
AU - Prabhu, Priya
AU - Varma, Raghava
AU - Lewis, Leslie Edward
AU - Rao, Pragna
AU - Shetty, Prajna P.
AU - Mallimoggala, Yajna S.Phaneendra
AU - Hedge, Asha
AU - Nayak, Dinesh M.
AU - Moorkoth, Sudeep
AU - Moorkoth, Sudheer
N1 - Funding Information:
Funding: This research was funded by GRAND CHALLENGES CANADA, grant number R-ST-POC-1707-07275, which was funded by the Government of Canada and by VISION GROUP OF SCIENCE AND TECHNOLOGY, grant number VGST/CESEM/GRD-308 (2014-15)/53/17-18/218, which was funded by Government of Karnataka.
Funding Information:
We implemented a pilot NBS programme for the Udupi district of South India, with funding support from Grand Challenges Canada (GCC), the Government of Canada and Vision Group of Science and Technology (VGST), Government of Karnataka. The aim of the project was to study the need and viability for a newborn screening programme in India. The objectives were:
Publisher Copyright:
© 2022 by the authors. Licensee MDPI, Basel, Switzerland.
PY - 2022/6
Y1 - 2022/6
N2 - India, a country with the second largest population in the world, does not have a national newborn screening programme as part of its health policy. With funding support from the Grand Challenges Canada, a pilot newborn screening programme was implemented for the Udupi district of South India to study the need and viability of a national programme in India. Six disorders were selected for the study based on the availability of funding and recommendation from pediatricians in the district. Here, we report the observed incidence during the study. A cost-effectiveness analysis of implementing newborn screening in India was performed. It is evident from our analysis that the financial loss for the nation due to these preventable diseases is much higher than the overall expenditure for screening, diagnosis, and treatment. This cost-effectiveness analysis justifies the need for a national newborn screening programme in India.
AB - India, a country with the second largest population in the world, does not have a national newborn screening programme as part of its health policy. With funding support from the Grand Challenges Canada, a pilot newborn screening programme was implemented for the Udupi district of South India to study the need and viability of a national programme in India. Six disorders were selected for the study based on the availability of funding and recommendation from pediatricians in the district. Here, we report the observed incidence during the study. A cost-effectiveness analysis of implementing newborn screening in India was performed. It is evident from our analysis that the financial loss for the nation due to these preventable diseases is much higher than the overall expenditure for screening, diagnosis, and treatment. This cost-effectiveness analysis justifies the need for a national newborn screening programme in India.
UR - http://www.scopus.com/inward/record.url?scp=85128240644&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85128240644&partnerID=8YFLogxK
U2 - 10.3390/ijns8020026
DO - 10.3390/ijns8020026
M3 - Article
AN - SCOPUS:85128240644
SN - 2409-515X
VL - 8
JO - International Journal of Neonatal Screening
JF - International Journal of Neonatal Screening
IS - 2
M1 - 26
ER -
