TY - JOUR
T1 - Parents’ experiences with prognosis communication in advanced pediatric cancers
AU - Ghoshal, A.
AU - Muckaden, M. A.
AU - Garg, C.
AU - Iyengar, J.
AU - Ganpathy, K. V.
AU - Damani, A.
AU - Deodhar, J.
AU - Vora, T.
AU - Chinnaswamy, G.
N1 - Funding Information:
To all the children and their parents who participated in this study, to colleagues in Pediatric Oncology, and all departmental staff.
Publisher Copyright:
© 2022 Informa UK Limited, trading as Taylor & Francis Group.
PY - 2023
Y1 - 2023
N2 - Prognostic information in advanced cancers is distressing. We surveyed 30 parents of children with advanced cancer from a tertiary cancer center in India to understand parental preferences for prognostic information. We found that 17/20 (85%) parents desired as much information about prognosis as possible and wanted it expressed numerically. All parents found information about the prognosis to be upsetting but still wanted additional information about the prognosis, except, 2/20 (10%). Parents who found information ‘somewhat’ or ‘extremely’ upsetting 8/20 (40%) were no less likely to say that knowing prognosis was important, or that it helped in decision-making. Thus, although many parents find prognostic information about their children with cancer upsetting, parents who are upset by prognostic information are no less likely to want it. The upsetting nature of prognostic information does not diminish parents’ desire for such information or their sense of hope.
AB - Prognostic information in advanced cancers is distressing. We surveyed 30 parents of children with advanced cancer from a tertiary cancer center in India to understand parental preferences for prognostic information. We found that 17/20 (85%) parents desired as much information about prognosis as possible and wanted it expressed numerically. All parents found information about the prognosis to be upsetting but still wanted additional information about the prognosis, except, 2/20 (10%). Parents who found information ‘somewhat’ or ‘extremely’ upsetting 8/20 (40%) were no less likely to say that knowing prognosis was important, or that it helped in decision-making. Thus, although many parents find prognostic information about their children with cancer upsetting, parents who are upset by prognostic information are no less likely to want it. The upsetting nature of prognostic information does not diminish parents’ desire for such information or their sense of hope.
UR - http://www.scopus.com/inward/record.url?scp=85145480030&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85145480030&partnerID=8YFLogxK
U2 - 10.1080/09699260.2022.2152169
DO - 10.1080/09699260.2022.2152169
M3 - Article
AN - SCOPUS:85145480030
SN - 0969-9260
VL - 31
SP - 154
EP - 160
JO - Progress in Palliative Care
JF - Progress in Palliative Care
IS - 3
ER -
